As we prepare our home- on- wheels to head back on the road I find myself buried in To Do lists, Supply lists, and lists to not forget all our lists. Our last couple of weeks have consisted of lots of preparation for our 3,000 mile journey ahead. Some of the usual RV work to ensure our safety and comfort in our first real winter season coupled with some not so usual travel essentials. Mixed in with our "RV- safe" toilet paper, our generator for boon-docking in style, and four full size propane tanks are some items that would seem completely out of place to the "typical" camper. After over two years of living with this invisible illness. sometimes, I forget how much its changed my daily life. Sometimes, I forget how much this illness dictates my decision making. Knowing there's a huge Spoonie Community out there, I feel compelled to share any and every tip, trick, and hack I come across to make even just one part of our lives easier.
Traveling can be exhausting for anyone but to do it in a body that feels under attack can seem impossible. When we moved into our home- on- wheels full time I was in terrible condition, we were concerned about how I would cope in our tiny conditions. We've been stationary for almost eight months now so I've confidently equipped our small quarters to handle the spontaneous flares while constantly working to make it an environment conducive for healing. Some of my must- haves in the truck for a day of driving are...
- A good pillow and a comfy blanket
- Yoga pants or leggings are non- negotiable
- The largest bottle of BioFreeze
- Your new best friend- Battery Operated Heating Pad
- Pain busting Essential Oils (soon to come from Spoonful Creation)
*For my pelvic pain sisters: Invest in a support cushion. It'll help relieve the pressure of long rides
Like any adventure in life nothing can prepare you like real- life experience does. So I'm sure when we're about 1,000 miles in or have our first strong wifi connection, whichever comes first, I'll have additions, adjustments, and exchanges on my list of must- haves that will be updated for your reading pleasure. :)
I truly hope this helps bring comfort to any fellow traveling spoons out there and if you have helpful suggestions it would warm my heart to read a comment from you. Sending spoonie hugs and healing vibes.
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